Please note....I am using some of my FB posts on this blog. I am trying to stay connected with people in both hemispheres of the digital world and it is easiest to repeat some posts here.
Friday, September 12, 2014
Sunday, September 7, 2014
Photos of England
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| walking in the green woods!!!!!!! |
Good times all around!
Thursday, August 28, 2014
Catching Up
I'm writing from England where we've spent the last few weeks with my parents. We've had the use of a home in a LOVELY village that has a playground, pool, library and green fields for the kids to play in. All of this is walkable from where we are staying. It has been a wonderful time.
We came to England for Tom to see a vestibular specialist to explore about what happened to his ears/brain/balance in January of this year. The doctor was amazing and able to give a very clear explanation of what was happening. The short story is that he did have quite a bit of damage from a viral attack in January that killed the nerves on his right side. However the brain is so amazing and can totally compensate over time.
She drew diagrams and gave illustrations about how our bodies are designed to determine balance and achieve equiblibrium. It was so fascinating. It was also interesting that she could give the verdict after just about 10 mins of shaking his head around and looking at his eyes! She did a much greater range of tests after that to determine if all 5 branches of the vestibular nerve were actually dead.
Because our eyes are connected to the balance system this is how we can observe what is going on in the brain. That is the basis of the ability to determine what is going on. Again, it was totally fascinating to learn about how our brain works and can compensate.
So we are very grateful that he'll be able to have essentially a total recovery. The viral attack is likely from the chicken pox virus and having an attack on one side does not increase the chance for an attack in the future.
The process of the brain learning a new way to function is the reason for all his fatigue this Spring. His recovery was slower than expected but she said that does not indicate a problem. We are grateful to hear that the fatigue will taper off. It already has to a great degree but we just didn't know if it could all return suddenly.
So we are grateful for this time in England to have this sorted out!
We came to England for Tom to see a vestibular specialist to explore about what happened to his ears/brain/balance in January of this year. The doctor was amazing and able to give a very clear explanation of what was happening. The short story is that he did have quite a bit of damage from a viral attack in January that killed the nerves on his right side. However the brain is so amazing and can totally compensate over time.
She drew diagrams and gave illustrations about how our bodies are designed to determine balance and achieve equiblibrium. It was so fascinating. It was also interesting that she could give the verdict after just about 10 mins of shaking his head around and looking at his eyes! She did a much greater range of tests after that to determine if all 5 branches of the vestibular nerve were actually dead.
Because our eyes are connected to the balance system this is how we can observe what is going on in the brain. That is the basis of the ability to determine what is going on. Again, it was totally fascinating to learn about how our brain works and can compensate.
So we are very grateful that he'll be able to have essentially a total recovery. The viral attack is likely from the chicken pox virus and having an attack on one side does not increase the chance for an attack in the future.
The process of the brain learning a new way to function is the reason for all his fatigue this Spring. His recovery was slower than expected but she said that does not indicate a problem. We are grateful to hear that the fatigue will taper off. It already has to a great degree but we just didn't know if it could all return suddenly.
So we are grateful for this time in England to have this sorted out!
Friday, July 18, 2014
well....maybe I'm not really alive
My previous blog post gave the indication that I was alive and well and able to post on this blog. My dear friend Sue who is here visiting me has been brow beating me none stop to post something on here. So I'm saying that life is a bit too much right now to be posting.
I'll throw some pictures up here but that is all I can manage now. Not sure when I'll be back......We are spending August in England so Tom can see a vestibular rehab specialist. My parents will join us and we'll just generally enjoy cold, rainy, green England!!
I'll throw some pictures up here but that is all I can manage now. Not sure when I'll be back......We are spending August in England so Tom can see a vestibular rehab specialist. My parents will join us and we'll just generally enjoy cold, rainy, green England!!
Friday, July 4, 2014
Saturday, April 19, 2014
Yes, I am still alive
I wish I had posted more on here but there has been so much going on and then when I DID try there were just internet or VPN or whatever technological issues to overcome! So disheartening.
Our family went to Sri Lanki for two full for some R and R specifically for Tom. Ever since his vertigo issues in January he gets easily exhausted and we've had a fair amount of stress from several angles for quite a few months. So it was a MUCH needed family time in nature.
Sri Lanka is the destination of choice for people who want to get away to a cheap place and don't mind bugs or sweat (=
Here is our photo album. I know it is long but the we just saw so many interesting things like how they get rubber from trees, and a precious gems factory and an elephant orphanage and lots of peacocks and other crazy animals.
If this slideshow is not showing up, try clicking on this link
Our family went to Sri Lanki for two full for some R and R specifically for Tom. Ever since his vertigo issues in January he gets easily exhausted and we've had a fair amount of stress from several angles for quite a few months. So it was a MUCH needed family time in nature.
Sri Lanka is the destination of choice for people who want to get away to a cheap place and don't mind bugs or sweat (=
Here is our photo album. I know it is long but the we just saw so many interesting things like how they get rubber from trees, and a precious gems factory and an elephant orphanage and lots of peacocks and other crazy animals.
If this slideshow is not showing up, try clicking on this link
Wednesday, March 12, 2014
Up and running again
I'm happy to say that I now have a computer to use again! Trying to do emails on a smart phone is not something I have patience for!!
Sadly, my car died yesterday as I was taking our househelper to the airport. She's going home to visit her family for SIX WEEKS which seems like forever. Our kids have been sobbing on and off about everything for two days now. Their emotions are slowly getting back into place.
It is a big switch from having full-time help to having none but we'll manage. I enjoy the practical aspects of taking care of a house but just can't do it with all the OTHER things I'm supposed to be doing in life as well (=
Here are some updates on life:
1. Tom went back to the dr at the first hospital we visited back in Jan. He has changed his diagnosis from BPPV to Vestibular neuritis. Esssentially there has been damage to the nerves that connect his brain and ears and recovery is not known until several months after the incident. He is in the zone now of being physically able to do whatever he wants but there are consequences for just about everything. He is still tired a great deal of the time and requires several hours of napping everyday just to keep going. So we are in a waiting period to see how his ears do and then we may pursue something this summer in Europe. Vestibular issues are hard to diagnos and treat and the ENT (who is an AWESOME Hungarian dr) said there is not one vestibular lab here or in the countries nearby. They have v. labs in any major city in Europe.
2. Layla will have her adenoids removed next month. She has had fairly significant hearing loss due to fluid that has been in her ears for at least a year and a half. This surgery will be done by the same dr mentioned above who is treating Tom. The surgery date just got moved so I'm not sure exactly when it is now but it is more like the end of April.
3. We are looking to take some time away as a family particularly for Tom to have some "decompression" time. We have had a very pressured and difficult Fall and then his vertigo episode in January has thrown us for a bigger tail spin. We are on the hunt for cheap flights and housing (= Layla has two weeks off of school so that is what precipitated it.
4. The After School club started again! It was a total mess the first weeks for reasons beyond our control but we have about 75 students signed up again and two new teachers. The kids really enjoy the club and I'm so glad that everyone understands their role and how it works. Things run more smoothly that way!!
5. Someone in town started a bible club for kids 3-7. I'm SO grateful. You don't realize how much kids learn at sunday school until you don't have it an realize that there is so much you can't teach your kids unless you really make a point to! So we are glad to have that for a few weeks this semester. This woman has all sorts of fun materials and story aids and puppet shows and so forth. She is an angel in my book. We had 14 kids there this afternoon - 7 of which came with me (=
6. The Aquaculture project is a bit quiet these days - we all have other things demanding our attention. Tom's proposal for work on the Abu Dhabi airport will be decided on this week. Selling construction products is great money when it works but usually you spend a ton of time on projects that don't pan out. We are really hoping this one will go through. It has dragged on for SO LONG!
I can't really think of anything else. I have quite a few fun photos to share but I don't have the computer synced to my phone yet and don't have the energy to sort it out tonight (= On a smaller note.....layla was VERY excited to come home from school with new reading material! She has been reading this simple readers for their reading program but the teacher finally gave her a chapter book! She was thrilled. She read her chapter in the car on the way home (=
Sadly, my car died yesterday as I was taking our househelper to the airport. She's going home to visit her family for SIX WEEKS which seems like forever. Our kids have been sobbing on and off about everything for two days now. Their emotions are slowly getting back into place.
It is a big switch from having full-time help to having none but we'll manage. I enjoy the practical aspects of taking care of a house but just can't do it with all the OTHER things I'm supposed to be doing in life as well (=
Here are some updates on life:
1. Tom went back to the dr at the first hospital we visited back in Jan. He has changed his diagnosis from BPPV to Vestibular neuritis. Esssentially there has been damage to the nerves that connect his brain and ears and recovery is not known until several months after the incident. He is in the zone now of being physically able to do whatever he wants but there are consequences for just about everything. He is still tired a great deal of the time and requires several hours of napping everyday just to keep going. So we are in a waiting period to see how his ears do and then we may pursue something this summer in Europe. Vestibular issues are hard to diagnos and treat and the ENT (who is an AWESOME Hungarian dr) said there is not one vestibular lab here or in the countries nearby. They have v. labs in any major city in Europe.
2. Layla will have her adenoids removed next month. She has had fairly significant hearing loss due to fluid that has been in her ears for at least a year and a half. This surgery will be done by the same dr mentioned above who is treating Tom. The surgery date just got moved so I'm not sure exactly when it is now but it is more like the end of April.
3. We are looking to take some time away as a family particularly for Tom to have some "decompression" time. We have had a very pressured and difficult Fall and then his vertigo episode in January has thrown us for a bigger tail spin. We are on the hunt for cheap flights and housing (= Layla has two weeks off of school so that is what precipitated it.
4. The After School club started again! It was a total mess the first weeks for reasons beyond our control but we have about 75 students signed up again and two new teachers. The kids really enjoy the club and I'm so glad that everyone understands their role and how it works. Things run more smoothly that way!!
5. Someone in town started a bible club for kids 3-7. I'm SO grateful. You don't realize how much kids learn at sunday school until you don't have it an realize that there is so much you can't teach your kids unless you really make a point to! So we are glad to have that for a few weeks this semester. This woman has all sorts of fun materials and story aids and puppet shows and so forth. She is an angel in my book. We had 14 kids there this afternoon - 7 of which came with me (=
6. The Aquaculture project is a bit quiet these days - we all have other things demanding our attention. Tom's proposal for work on the Abu Dhabi airport will be decided on this week. Selling construction products is great money when it works but usually you spend a ton of time on projects that don't pan out. We are really hoping this one will go through. It has dragged on for SO LONG!
I can't really think of anything else. I have quite a few fun photos to share but I don't have the computer synced to my phone yet and don't have the energy to sort it out tonight (= On a smaller note.....layla was VERY excited to come home from school with new reading material! She has been reading this simple readers for their reading program but the teacher finally gave her a chapter book! She was thrilled. She read her chapter in the car on the way home (=
Wednesday, February 26, 2014
We're back - here are some high/low lights
Well we survived our 9 day camping/hoteling trip with five adults and six kids under the age of seven. It was very helpful in understanding the area and learning more about this part of the country!
Sadly, my computer is now broken for some mysterious reason that is yet to be determined. I'm on Tom's computer and I'm not sure when mine will be repaired.
In terms of the trip...things that were GREAT:
1 - Kids' attitudes were really good for the most part. Adults did pretty good too (=
2. Camping was great except for the first night
3. We met LOTS of random local people who were kind enough to stop to talk to us and answer questions about life in their town/area.
4. We had only one situation where our car was a bit out of control on the dirt
5. No one got really hurt! There is a history of this when we go camping so we were happy to break the trend!
6. We saw great little towns and communities along the coast. The island was spectacular.
Things that we would rather avoid next time:
1. The gale-force winds our first night camping....didn't know that there was a big storm going on at the time!!
2. Ryan got sick the second night. He is a trouper but just didn't sleep well AT ALL the whole time.
3. We were tired of being in the car for SURE. Usually we were able to break up the driving so it wasn't too bad.
4. Wind; just doesn't mix well with camping. It is one of those things that you are immune to in normal life that you only realize can totally exhaust you if you don't have a car to hop into or a house to stay in (=
I'll try to post a web album of photos but I'm not sure quite yet of how to do that with my computer being down. All my quick links make it much faster (=
Thanks for your prayers!!
Sadly, my computer is now broken for some mysterious reason that is yet to be determined. I'm on Tom's computer and I'm not sure when mine will be repaired.
In terms of the trip...things that were GREAT:
1 - Kids' attitudes were really good for the most part. Adults did pretty good too (=
2. Camping was great except for the first night
3. We met LOTS of random local people who were kind enough to stop to talk to us and answer questions about life in their town/area.
4. We had only one situation where our car was a bit out of control on the dirt
5. No one got really hurt! There is a history of this when we go camping so we were happy to break the trend!
6. We saw great little towns and communities along the coast. The island was spectacular.
Things that we would rather avoid next time:
1. The gale-force winds our first night camping....didn't know that there was a big storm going on at the time!!
2. Ryan got sick the second night. He is a trouper but just didn't sleep well AT ALL the whole time.
3. We were tired of being in the car for SURE. Usually we were able to break up the driving so it wasn't too bad.
4. Wind; just doesn't mix well with camping. It is one of those things that you are immune to in normal life that you only realize can totally exhaust you if you don't have a car to hop into or a house to stay in (=
I'll try to post a web album of photos but I'm not sure quite yet of how to do that with my computer being down. All my quick links make it much faster (=
Thanks for your prayers!!
Wednesday, February 12, 2014
And we're OFF!
| We will be traveling in this same area but a few hours further down the coast |
Check the previous two posts to figure out what we are looking at/for as we hit the road for 8 or 9 nine days!
We are grateful for our companions who are such troopers and willing to camp with us all over the place! They finally got a four wheel drive after EXTENSIVE searching. So their kids are happy to have more room in the car for sure and we all feel more secure about them not getting stuck in the sand! We are also able to borrow a trailer which makes packing a bit simpler.
Our house helper will be coming with us - one of the many ways she is a great match for our family....she loves to camp! The first time she came with us two years ago she was very hesitant but after the first day she said "this is just like life in Ethiopia way out!" Meaning that outside the city this is how people live. Then she told me she could make us better food next time now that she knows what to expect (= Love that about her.
We are camping both because it saves significant money on hotels but also because the weather is gorgeous for another few weeks (it will probably be COLD actually.... We are taking the winter coats my sister bought us last winter!!) Part of being able to live here long-term and enjoy it is to make the most of the "winters" by being outside. It is more and more fun now that are kids are 3.5 and 6.5 and we are out of the "eating dirt and random stuff on the ground" for the most part (=
So do think of us as we are driving all over the place! We are interested to see what we will find and who we will meet.
Tuesday, February 4, 2014
Road Trip Extravaganza
As a result of the topic described in the previous post, we have been planning a road trip to check out the environment where all this might take place.
It takes two days to drive from our current home to the island and bay designated by the government to develop the particular mariculture species that the company is thinking "growing". We need to take this trip to look at some of the following factors:
1. Is it feasible to live as families with young kids on the island? We are two families with 6 kids total under the age of 7. Good Times.
2. What would schooling look like? Probably home school but then is there internet access of some sort?
3. If we are to do these projects and the community development/"NGO-type" work with fishermen and their families what might that look like? When the government did their pilot project with the exact same species they discovered that it was the women who actually did all the work and not the men. This was totally acceptable for the government but all the processes are set up for men to do and in a gender segregated society this will take some management. This is an example of the community development side of things.
4. What are the largest towns nearby and is it better to live there and have the guys drive a bit further?
5. Who are the local people involved in this and can we manage to meet them in the few days we have there?
6. We have heard there is only a very small village and some seasonal "resort" for surfers (= Sounds a bit random. Is there housing for rent? Grocery stores? etc
So we have lots of questions and we've had to put the trip off three times because of Tom's health. He is doing okay but still tires very easily and would not be able to ride in a car for 8 hours!
At this point the plan is to leave on Feb 12th so we'll keep everyone updated as we can!
It takes two days to drive from our current home to the island and bay designated by the government to develop the particular mariculture species that the company is thinking "growing". We need to take this trip to look at some of the following factors:
1. Is it feasible to live as families with young kids on the island? We are two families with 6 kids total under the age of 7. Good Times.
2. What would schooling look like? Probably home school but then is there internet access of some sort?
3. If we are to do these projects and the community development/"NGO-type" work with fishermen and their families what might that look like? When the government did their pilot project with the exact same species they discovered that it was the women who actually did all the work and not the men. This was totally acceptable for the government but all the processes are set up for men to do and in a gender segregated society this will take some management. This is an example of the community development side of things.
4. What are the largest towns nearby and is it better to live there and have the guys drive a bit further?
5. Who are the local people involved in this and can we manage to meet them in the few days we have there?
6. We have heard there is only a very small village and some seasonal "resort" for surfers (= Sounds a bit random. Is there housing for rent? Grocery stores? etc
So we have lots of questions and we've had to put the trip off three times because of Tom's health. He is doing okay but still tires very easily and would not be able to ride in a car for 8 hours!
At this point the plan is to leave on Feb 12th so we'll keep everyone updated as we can!
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